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SS/HB 1953 - Under this act, each primary care provider and urgent care physician may inquire of new patients, 18-45 years old, on a new patient intake form as to whether the patient is registered with the Bone Marrow Registry, and shall provide information developed by the Department of Health and Senior Services if the patient is not registered. Additionally, this act establishes an "Advisory Council on Rare Diseases and Personalized Medicine" in the MO HealthNet Division to assist the Drug Utilization Review Board when making recommendations or determinations regarding prior authorization and reauthorization criteria for rare disease drugs and other topics relating to rare diseases. The act specifies the Council's membership and requires the Council to meet no later that February 28, 2019. The Council's recommendations to the board shall be in writing. All members of the Council shall sign a conflict of interest statement each year and at least 20% of the members shall not have a conflict of interest with any insurer, pharmaceutical benefits manager, or pharmaceutical manufacturer. This provision is identical to HCS/SS/SCS/SB 826 (2018), as amended and SCS/SB 995(2018) and similar to HB 2407 (2018). SARAH HASKINS
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