SB 493 - This act modifies the law relating to the screening of genetic diseases and birth defects. The central registry, maintained by the Department, can collect and store data on genetic diseases and birth defects to verify that genetic services, including post-treatment services, are being provided. Information obtained from the central registry will be reported to the Department of Health and Senior Services and other health care providers for the screening, treatment, and prevention of genetic diseases and birth defects.

Any person who in good faith reports newborn test results or other required information to the Department will be immune from any civil or criminal liability relating to the reporting.

The Department may disclose information contained in the central registry without a parent or guardian's written release to the following:

- Employees of public agencies or departments to carry out public duties and

- Health care professionals that provide genetic or counseling services to a child.

Any person that discloses confidential information for any other purpose will be liable for civil damages.
LORIE TOWE